Sunday, September 18, 2011

Scar - 6 months post thyroidectomy


This is my scar at approximately 6 months post surgery.  It is still visible but I no longer wear a scarf or anything else to hide it.  I tried to keep the sun off of it all summer but I found that this was sometimes difficult.  I am still feeling quite well.  I definitely feel better than I did before surgery.  All of the doctors told me that my thyroid hormones were within normal limits and therefore my symptoms of fatigue, weight gain, dry hair and skin, etc... were not a result of thyroid disease.  I do believe in medical science so it is difficult for me to understand why I feel so different now but I do.  I have more energy and as long as I watch what I eat and stay active I am having an easier time controlling my weight.  My moods are more stable and I think that I am more stable in general.  Of course maybe a lot of the symptoms I experienced previously were a result of stress.  Although I definitely haven't reduced nearly all of the stress in my life I am no longer stressed over whether or not I should proceed with the thyroidectomy.  I now feel that I made the right decision and am ready to move on.  

Tuesday, July 12, 2011

Hyperthyroid after Thyroidectomy

Today I saw my endocrinologist and as I suspected I am slightly hyperthyroid. I am a little disappointed because I have never felt better. I am also a little discouraged that she didn't ask much about my symptoms. However, she did state that there were two doses we could try next but as I am feeling so well she went with the higher dose. I will now take 112ug of Synthroid instead of 125ug. I will continue to post about how I feel on this new dose and hope that it doesn't make much of a difference in how I feel.

I thought I may be hyper as I have never had so much energy. I was also eating more than usual and my weight had stabilized 6 pounds less than before surgery. I also was staying up later at night without feeling tired. The good things have been how stable my moods are and how clear my brain feels. I really hope that these last two things don't change.

Saturday, July 9, 2011

Feeling Great Post-Thyroidectomy: Positive Thyroidectomy Story

I thought that it was time for an update of this blog.  I have been very busy and life is moving on even as I write. 

I just wanted everyone to know that I am still very glad that I made the decision to have my large goiter removed.  I feel better than I have in years.  I have more energy, I am sleeping better, I am finding it easier to control my weight and I am much more stable.  I used to have lots of mood swings as well as shifts in my energy level but for the past few months all of that has stabilized.  I feel happier and more stable. 

I am no longer coughing.  I can breathe and I no longer have a large lump in my throat.  I now have a small scar which is getting smaller each day.  I am doing my best to protect it from the sun but it is summer here and sometimes I forget.  I am also losing more hair than I had in the past but I've read that this can be a temporary symptom of the Synthroid. 

Still, I won't begrudge a small scar on my neck for all the health and happiness that this journey has afforded me. 

Since my surgery, I have continued to be active and even went on a camping and hiking adventure where I was able to keep up with most of the others.  It was sternuous physically and emotionally but was a perfect compliment to this journey. 

This week I see my endocrinologist to discuss my current thyroid levels.  I am hoping that my levels are within the normal ranges because I really do feel good.  I am a little concerned that she will decrease the levels and my energy levels will slip again.  I only think this because I have never felt so good, but I don't feel that I have any symptoms of hyperthyroid (besides potentially the hair loss) and so I hope that I am among the lucky few who are stabilzed already.  I will be sure to update this blog with the results of that appointment. 

When I started this journey I looked for blogs of people who had a thyroidectomy due to benign thyroid disease and I couldn't find any.  I was told that thryoidectomy was the treatment of choice for a large multinodular goiter and that the procedure was routine.  I was told that most people didn't experience too many problems post-op, however when I searched the internet I could only find message boards where people were still suffering.  Because of this I almost didn't have this surgery. Where were the people who had this "routine" procedure and moved on?   I was looking for their point of view.  I wanted to know that it was possible to have this procedure and not end up with all of the problems I had read about.  I don't discount those stories and I am glad that I have read them.  I know that I am lucky and that I could have had so many more complications or even cancer, but I didn't.   I know that a wide range of peolpe will read this blog but my hope is that I can help one person with benign disease know that there can be a happy ending.  I hope that others who require a thyroidectomy for benign thyroid disease will read this blog to find a more positive outcome.  I know that everyone's experience is different but please know that sometimes a thyroidectomy really is the right decision and can move you forward in a positive direction. 

Scar - 12 weeks post thyroidectomy

This is a picture of my surgical scar 12 weeks after the total thyroidectomy was performed. 

Monday, May 2, 2011

Exhausted....

Today, I didn't think that I'd make it through the day. My bed was so cozy and it was all I could do to drag myself out of it this morning. I did though, and made my way to work where I felt like everyone was rushing me. I was in slow motion and everyone else was the road runner! Now work is over and I'm finally home with unfinished work hanging over my head. All I want to do is climb back into bed but I have to take care of the kids, feed them, help with homework, get them ready for bed.....will this day EVER end?

Friday, April 29, 2011

5 weeks Post Thyroidectomy

It has now been 5 weeks since my surgery and 2 weeks since I started the synthroid.  I think that I am doing quite well.  I am keeping busy and trying to stay active, although my motivation isn't quite as high as it was pre-op and immediately post-op. 

The only things that I have noted to be different are the following:  I am finding that I feel a little cranky, especially in the morning.  (I will allow that those around me may argue about the "little" part  :) )  I also used to be a night owl.  I could stay up all night (although I would have difficulty getting up in the morning) but now I am finding that by 9pm I am done for the day.  I don't have any energy left for anything else and I am ready to go to sleep.  It has actually made me more organized and I am on a much more stringent routine than I have ever been before.  I don't think that it's necessarily a bad thing, just different. 

By my calculations, I should be close to the lowest thyroid level before my body begins to adjust to the synthroid so I am hoping that things will only get better from here :) 

Scar - 5 weeks post thyroidectomy


5 weeks post-op

I can't believe that it has been 5 weeks since the surgery.  The swelling is continuing to improve, but I can't say that I see much difference in the scar.  I am applying bio-oil on it now and keeping out of the sun as much as possible. 

Thursday, April 21, 2011

Diagnosis: Benign Multinodular Goiter! No Cancer!

I have been very busy getting back into my hectic routine and so have neglected this blog.  So sorry to anyone who has been following. 

Last week I did see my endocrinologist and she told me that all of the masses were benign and she started me on Synthroid.  I am starting on 125mcg a day.  I told her that I was concerned that the synthroid wouldn't be active until weeks after the cytomel was out of my system.  She told me that wouldn't be the case, but with my knowledge of pharmacolgy I'm not so sure and I still worry about becoming hypothryoid.  It has been a week now since I started the Synthroid and I can't say that I'm experiencing hypo symptoms.  Sure, I'm tired but who wouldn't be in my situation.  I am working mother, wife, daughter, friend and volunteer.  Life is insane sometimes and of course I get tired after working long hours and then coming home to work again until bedtime.  So life goes on and so far I don't feel a whole lot different then I did before the surgery.  If only I could pick up my motivation to be a bit more active.....

Today I went to the surgeon again and my vocal cord is still paralyzed on the left but he's still optimistic that it will recover.  I will need to return again in 2 months and in the meantime I will only sing while driving alone in my car where no one can hear me :) 

I managed to get a copy of my pathology report from my endocrinologist but it was only the gross pathology (what can be seen without a microscope).  I asked the surgeon why there wasn't a histopathological report (where the cells are described).  He told me there was but that he couldn't print it today.  I wonder why she didn't give me that part.  I will ask specifically at my next visit. 

I have posted a picture of my scar last week (3 weeks post-op)  http://bit.ly/iiKuQS and today  (4 weeks post-op).  http://bit.ly/hCkEzF

Scar - 4 weeks post thyroidectomy


4 weeks post-op

The swelling is continuing to go down but is definitely still present and the line is still quite red. 

Scar - 20 days post thyroidectomy


20 days Post-op
 Although there is swelling it has decreased some.  The scar appears to be a darker red than previously but I am told that this is normal. 

Thursday, April 14, 2011

First few days back to work.

Today, is the day that I go to the endocrinologist.  I am hoping that she will have the pathology report.  I will be sure to post the results when I get them.  In the meantime, I will write about my first few days back to work. 

Monday I worked a 10 hour day.  The morning was mostly catch up so I had enough energy to go for my regular lunch time walk.  It was so nice to get out in the sun with colleagues and walk.  The afternoon was busier and so by the time I got home I was tired but not excessively so.  I went to bed early and was up nice and early on Tuesday to do it all again. 

I worked another busy 8 hours and went for a run on my lunch hour.  The sun was shing and my mood was happy and light.  It was great to experience my feet pounding the pavement again :)  I felt that I had a turned a corner in this journey.  I was happy that I had decided to have my thyroid removed and felt that, now, I could move on to the next chapter.  I was excited to have an active body and mind and be free of the worry of a sick thryoid.  By Tuesday evening, however, I was starting to lose that gumption and was wearing down.  I made it to my regular Tuesday evening vonlunteer activity but everyone was telling me how tired I looked (Thanks =p), and I was starting to feel cranky!  Another early night for me. 

On Wednesday, I couldn't get out of bed.  The sky was dark and the temperatures had dropped overnight.  I was very tired!  I did manage to make it to work, and through another gruelling 10 hour day, this time without a break for lunch (Don't worry, I did eat).  When I got home I was exhausted and cranky.  I was snapping at my family when they didn't deserve it.  DH was nice enough to take the kids to the park while I cleaned the kitchen and prepared lunches for the next day.  I needed that time alone.  It helped some with those feelings of frustration but I was still tired and was so happy to see my bed last night. 

Today is my day off and I feel like I have my energy back.  I will see what the endocrinologist says today. 

Tuesday, April 12, 2011

Going back to work after thyroidectomy

Yesterday I reached another milestone in this journey as I headed back to work for the first time in over 2 weeks.   I have been home for 2 weeks after my thyroidectomy surgery, relaxing and recovering.  I have had a stress free 2 weeks and yesterday was the first day that I was back in the full swing of things.  Would I have enough energy?  Would the workplace stress get to me?  How was I going to deal with the first day back and all the subsequent days after that? 

It was a long day and I was tired at the end of it but I think that the hardest part was the change in my morning routine.  I used to get myself and the kids ready for work in about 45 minutes and I always prepared breakfast first.  I need to eat or I get headaches and so I have always eaten breakfasft dierctly after getting out of bed.  Although I haven't found any information that says that Cytomel should be taken on an empty stomach, I do know that Synthroid will work best if taken upon rising and one hour after breakfast.  Instead of waiting for the Synthroid (I know that I will eventually be taking it), I have decided to change my routine now to be able to take the meds on an empty stomach.  I am getting up about an hour earlier to take the medication before breakfast.  Now if only I could find an hour at night to get to bed an hour earlier :)

I carried off the new routine without a hitch yesterday and wasn't even rushing to get the kids to school on time.  Maybe this routine will work out better....  Then I drove into work, expecting things to be different.  I mean I felt different.  I feel lighter, healthier, less stressed.  A whole 2 weeks have gone by shouldn't it be different?  The staff greeted me and brought me up to speed, but otherwise everything was pretty much the same as I left it.  The morning schedule was light and so I was able to catch up and do some light work.  At lunchtime I returned to my regular walking routine with a colleague and then the afternoon arrived.  It was a busy afternoon.  When I saw the schedule in the morning I was concerned about the packed afternoon schedule but it worked out well.  There wasn't anything that I couldn't handle and in fact the afternoon passed by quickly and without stress.  Before I knew it the day was finished and I was back home.  I was tired but not exhausted.  I didn't allow the stress of others to get to me, and here I am ready to start all over again today.  My goal is to feel just as good by the end of the week!

Sunday, April 10, 2011

The official part of my recovery is drawing to a close.  Tomorrow I head back to work, back to my normal routine, back to the grind as they say.  I will work a 10 hour day in a stressful environment and return to a family who will still need me as well.  I will return late to a house that needs cleaning, lunches that need making and laundry that needs doing.  I will remember that this is my life; and life will continue on just as it always has.  It has been nice to have these past two weeks off, regardless that it has been for recovery.  Although I am physically ready to return to work I would love to have a little bit more time at this relaxed pace.  I don't remember feeling this good and healthy.  I feel normal and have had very little stress.  Something tells me that this is how life should be.  I am hoping that at least some of this new found peace has to do with the removal of a sick gland and that I will feel just as well when I return to work.  I am going to keep a positive attitude that this is the case. 

Although my official recovery is drawing to an end.  I know that I actually still have more recovery ahead of me.  I can see it in the lines in my neck; hear it in the volume and pitch of my voice; and feel it in the lump in my throat.  I will also still need to have my medication regulated and will have to take this medication every day for the rest of my life.  Still, I believe that the worse is over and I can leave behind the chapter of anxiety and stress caused by making this decision.  I know that it was the right one and that in the end I will be better for it. 

Friday, April 8, 2011

2 Weeks Post-Thyroidectomy



Today is exactly two weeks since my thyroidectomy.  I think that, in general, the recovery has been pretty good.  There have been a few hiccups here and there, such as, a sore mouth and some bouts with low energy.  However, overall I haven't felt a lack of energy, my weight has remained constant (after an initial drop and then a slight increase) and most days I have been able to make it through the day without any problems. 

Since it is the two week mark I thought that I would recap my post-op progress for anyone who may have just found this blog.  I had a total thyroidectomy exactly 2 weeks ago today.  The procedure took about 2 1/2 hours and then I took another few hours to recover from the anesthetic.  I spent the night and the first day following surgery in the hospital until they were able to determine that my calcium levels were normal.  My levels were just above low normal the whole time I was hospitalized and so the evening after surgery I was released from the hospital with a prescription of Tylenol 3 for pain management and Cytomel for thyroid hormone replacement.  I was told to watch for any tingling in my hands and feet or any other signs that my calcium may be dropping.  I haven't experienced any symptoms or low calcium so I assume that my parathyroid glands were left intact -Yeah! 

When I returned home I rested and slept a lot for the first 2 days, but I was sure to get some exercise each day.  I started with a very short walk 2 days after surgery and gradually increased the distance and speed each day.  I did feel out of breath the first day that I walked but not since.   I feel as though I am ready to run and start working out again but since my neck is so swollen I am reluctant to do too much too soon.  Yesterday I felt very tired, but late in the afternoon I developed a migraine. This is typical for me so I don't think that it had anything to do with recovery. I didn't drive for the first week because I couldn't turn my neck far enough to check my blind spots. This week I have started driving again, so I am feeling more normal.


The roof of my mouth was very sore for the first week and so my diet was limited.  I was mostly eating chicken soup and meal replacement drinks.  I couldn't tolerate extremes in temperature, acid, sugar or spice.  By last Friday that had resolved and I have been eating well ever since.  My weight dropped dramatically the first week after surgery.  I had started Cytomel and hadn't been eating much do to the pain in my mouth so both of these things likely played a role in my initial weight loss.  (see post on thyroid hormones)
 
The first week my incision line was covered with steri-strips.  I couldn't see it but I could tell that it was swollen.  On Monday I saw the surgeon and he removed the strips.  The incision line was almost invisible but there was a great deal of swelling.   I have noticed that the swelling is decreasing some but that the actual incision appears to be more red than it was on Monday.  I have started applying vitamin E oil. 


Scar 2 weeks post-op


Most days I have felt better than I did prior to surgery. However, I have had a few days where I have felt very tired. I had days like these prior to surgery as well so it may just be normal. I'm not sure why I feel better than ever. It could be a result of the removal of a sick gland, the medication or just a more relaxed schedule. I usually have a very busy schedule which is hard to keep up with and it can wear me down. I may be able to tell more when I get back into my regular routine next week.


I am still waiting for the pathology report and hope to have it next Thursday.

Thyroid Hormones

I thought I might take some time to try and explain the Thyroid gland, how it works and why I will need to be on medication for the rest of my life. 

The thyroid gland is a small butterfly shaped gland that lives at the base of the neck.  It produces thyroid hormones which are necessary to run our bodies by maintaining metabolism.  That is they make sure that organs are not running too fast, or too slow.  If you have too much thyroid hormone your body will overwork and this can be dangerous, especially to your heart. If your thyroid levels are too low, you feel run down. Very severe instances of low thyroid hormones can result in severe swelling of the tissues and coma. This is called "myxedema coma" and can be fatal. Therefore, it is very important that your body has the right amount of thyroid hormone. Your Thyroid gland produces two hormones T4 and T3.   However, your organs can't use the T4 hormone and so your body needs to change T4 to the active hormone T3. The half life of the thyroid hormone (T4) that your body produces is about 7 days. What this means is that every 7 days the amount of hormone will drop to half of it's previous level. So, if I started with 100% T4 before surgery, it would have been 50% last week and 25% today. The half life of the T3 is even shorter and so at this point I likely don't have any of my own T3 hormone. Without medication, my body will run out of thyroid hormone. That is why I was given the Cytomel. Cytomel is a T3 supplement which has a shorter half life. If I need to have RAI (Radioactive Iodine) which is the treatment fro thyroid cancer, I will need to be hypothyroid. Because the half life or T3 is shorter it would take less time for this to occur and the RAI could be done sooner. Also, T3 is the active thyroid hormone. T4 needs to be converted to T3 in the body to be effective. Therefore Cytomel will have effects sooner and so this may have played a role in the rapid weight loss I experienced the first week. Since I have not had any blood tests to determine the levels of my thyroid hormones it could be possible that my T3 was to high, thus increasing my metabolism and thereby decreasing my weight.

Side effects of Cytomel are related to allergic reactions or over dosage symptoms which are the symptoms of hyperthyroidism (too much thyroid hormone).  These can include:



confusion

dizziness
fast or irregular heartbeat (palpitations)
feeling faint
mood swings
muscle weakness
psychosis
extreme restlessness
light irregular menstrual cycles
heat intolerance
weight loss

In severe instances over dosage or severe hyperthyroidism can result in heart failure. 





Thursday, April 7, 2011

Tired......

Today it was even harder to get out of bed than yesterday.   I am still feeling sluggish and have what I describe as a "fog on my brain".  It is not quite a headache but just something not quite right and my concentration isn't as good as it has been for the past week or so.  I felt better last week then I do this week.  I am hoping that it is partly boredom and that once I am back to work it will all straigten out.  If I feel worse tomorrow I will call the doctor to see if there is anything I can do before I see the endocrinologist next week.  I start work on Monday and need to be on the top of my game.  It is a busy time of year and I have already missed two weeks. 

I will drag myself out for a walk this afternoon to see that may help as well.  I was walking about 6km every day as well, as running and working out prior to the surgery.   Although I have continued to do some walking post surgery I have not been nearly as active.  Maybe my body is feeling the effects of the reduced activity.  I am not brave enough to start running or doing any other type of aerobic activity, stretching, lifting, etc yet but I will try to walk as far as I can this afternoon to see if I can't get my metabolism to increase a little bit naturally. 

Wednesday, April 6, 2011

Feeling tired

I'm feeling tired today. I find that everytime I don't feel 100% I worry that my thyroid levels are out if whack! Before I would have thought that I was tired and moved on but now I am second guessing everything. I was able to reach the endocrinologist today and have an appointment for next week. I assume that she will check my thyroid levels then. Hopefully, I will also learn the results of my pathology report. If all is well I will likely start on Synthroid and begin the regulation of my thyroid levels for real. I hope that I respond well and that I don't develop symptoms of either hypo or hyperthyroidism. I am afraid that I won't feel like myself and all I want to do is move on with life. I know that I will never be able to forget about all of this but I want to get back to "normal".

12days Post Thyroidectomy


This is my scar today, 12 days after the surgery.  It is very swollen and bruised but the actual incision line is barely visible.  It is still tender but I'm sure that will improve every day. 

Singing After Thyroidectomy

Yesterday was a pretty busy day for me.  I had some errands to run and met a friend for lunch.  I was able to enjoy some time in the mall without the kids or a time limit and forgot how much I enjoyed shopping (even if I don't buy anything).  I also had a volunteer job in the evening.  I seemed to have the energy to do all of this but this morning I found it difficult to get out of bed.  I feel tired today, but not exhausted.  I plan to take it easy.  I have a sick kid home today as well so maybe we will spend the day watching movies together :) 

Although I seem to be able to talk normally, I have noted that I can't sing as well, especially in the upper ranges.  I mentioned this my surgeon when I saw him earlier this week.  He took a look at my vocal cords and noted that my left cord is slightly paralyzed.  He said that it was likely stretched during the procedure but that it should resolve with time.  I guess I won't be recording any records in the near future - haha. 

Monday, April 4, 2011

Watching my weight post thyroidectomy

I am feeling quite well today besides the lack of pathology report. I spent the weekend with friends and family and a had a good time. I seemed to have a good deal of energy and was able to carry on with normal activities. I know that I shouldn't watch the scale but I do. I have read about a lot of people who are concerned about weight gain post thyroidectomy. I want this blog to help someone; to hopefully help overcome any anxiety they may have about this procedure, and so I wanted to be sure to track my weight as well.

I had lost quite a large amount of weight after the surgery.  I wasn't able to eat much when my mouth was sore and so I think I made up for it this weekend when I was able to eat whatever I wanted.  Now I am back on track with eating a healthy diet and watching my calories (as I was doing prior to surgery). 

So from the date of the surgery I lost a whopping 8 pounds (not healthy) and as of today I have gained 2 pounds of that back.  For any of you who are concerned about the change you may experience in your weight after surgery that is a net loss of 6 pounds.  I know that everyone is different and I don't know what will happen as the weeks continue on and turn into months, but I will keep you updated on my personal journey. 






No Pathology Report - yet!

I was so anxious waiting for today to be able to finally get the pathology report and put an end to the questions racing through my mind.  So, I tried to pre-occupy myself this morning and didn't blog on purpose so that I would have some news to tell when I did.  Well, here is my news; no pathology report.....aggh!!  Now I have to wait another 2 weeks for a second follow-up appointment at which time I will finally get the results!  I know this isn't really terrible news.  I know that I will eventually get the report.... It is just the waiting and not knowing that always seems to be the worst.  Maybe I should go by the old adage that "no news is good news" . 

At least I got the steri-strips off today.  Later I will post pics of what the incision looks like without the strips.  The incision is barely visible even after such a short time but the area where my thyroid used to sit is quite swollen.  It looks like they put something in there, rather than take something out  :)  I tried to clean some of  the glue from the tape off but it is still a little tender so I will wait and soak it well in the shower. 

Saturday, April 2, 2011

The Weekend

Finally the weekend is here.  This is important to me for two reasons.  First, it means that I don't need to spend my recovery time in solitude; second it is only two more days until my follow-up appointment.  It is a beautiful day outside today so my family and I are planning to spend as much time outside as possible.  I will place a scarf around my neck to help protect it and enjoy the day. 

Yesterday was a good day.  The intense pain in my soft palate became very bearable and I was able to eat solid foods.  I felt energized enough to keep up with the day and in the evening I was able to convince my entire family to go for a walk with me.  It was great to spend time together being active again.    My incision wasn't as itchy yesterday as it was on Thursday but I can feel the steri-strips starting to curl and peel.  I can't wait for them to come off!  They are itchy and I am eager to see what the incision looks like under the strips. 

Friday, April 1, 2011

Exactly 1 Week Post Thyroidectomy

I can't believe that it has been a whole week since my Total Thyroidectomy.  I am feeling pretty good.  I did wake up with a headache but I got up and took my Cytomel and felt better in about half an hour. My soft palate is healing!  Last night I was able to eat a bowl of rice.  There is still some pain but it appears to be localized to one spot on the right side.  This morning when I woke up My throat felt dry and sore but a good drink of water and now it is merely slightly tender.  I am so excited that I may be able to eat more solid food today.  Still,  I plan to be cautious so as not have a set back. 


Last night my incision became intensely itchy.  I didn't know if I would be able to deal with the intensity.  I wondered if it was part of the normal healing process or some kind of allergy to the steri-strips.  I have had reaction to medical tape in the past so I hope it's not an allergy.  This morning that is improved as well and in 3 days I will see the surgeon and hopefully these things will be removed.  I have read that they generally fall off on their own in 7-10 days but so far mine have not budged.  I have even been taking showers without much effort to keep them dry. (My surgeon said it was ok).  They do feel uncomfortable and itchy and I can't wait for them to come off but I know that they serve a purpose and so will deal with them until Monday. 


I thought that I have been doing well, not stressing much about this whole ordeal and just taking one day of recovery one day at a time.  I have felt pretty confident that everything has gone well and will continue to do so.  However, last night I had a dream that I went for my follow-up appointment and received the pathology report.  In my dream the report diagnosed a mix of both Papillary and Follicular Cancer of the Thyroid.  My original biopsy was benign but I guess I still have unconscious concerns about a cancer diagnosis.  Perhaps that is why I woke up with such a headache this morning.  In three more days I will have the actual pathology report and then  I can put these fears to rest. 


Today the sun is trying a little harder to find it's way through the clouds but the sky is still grey.  I am imagining a nice sunny day to keep myself upbeat and happy :)  I will try to do more today.  I will walk to school to get the kids and let them play at the park for as long as they like on the way home. 

Thursday, March 31, 2011

Day 6 of recovery post thyroidectomy

Here I am at 6 days post thryoidectomy.  To tell the truth, I am having a hard time trying to think of something to write about today, but I wanted to assure everyone that I am still doing fine.  I am, doing fine, that is.  Although my soft palate is still sore and I am still on a bland liquid diet, it is not as bad as yesterday. My neck incision is still dry and clean with minimal swelling and I am counting down the days until the steri-strips come off (4 days and counting...).  I am past the half-way point with the steri-strips.  Yeah!!  I still have enough energy to get through the day without napping and am not feeling tired after I walk. 

Today I did note that I lost some eyebrow hair along with the hair on my head.  I know that this can be a symptom of unbalanced thyroid levels but, as I am not noticing any other symptoms, I am going to chalk it up to normal. 

It is a dark day outside today the sky is gray and dreary.  The air feels cold and heavy and I have always been prone to mood swings based on the weather.  Still I don't feel sad or stressed at all, just quiet and introspective.  I feel like I'd like to curl up with a good book or good movies for the whole day.  I won't though, because I don't want to be the object at rest that stays at rest.  I will do chores, go for a walk, pick the kids up from school and look forward to the day when I can actually run and work-out again!

Wednesday, March 30, 2011

Positive Healing

Today my energy has been the lowest since the actual surgery.  I felt tired and lazy and did not want to do anything besides sit in front of the television.  I wondered if this was just some sort of inertia or if it was a real side effect of the surgery.  Maybe I was feeling sorry for myself for the pain in my throat, or maybe I was just bored.  I decided that I would go outside anyway!  I dragged my butt out the door and walked to the local pharmacy for Ensure and Vitamin Water.  It was so nice to be outside.  When I get outside in the fresh air and the natural light I feel normal.  I can forget that I am home from work on Sick Leave and enjoy the great outdoors!! 


This afternoon I read an article about the the power of Positive Thinking and it's link to healing.  I am going to make it a priority to remember this and stay as positive as I can.  Still, I won't hide any feelings or symptoms here. I really do want to paint a real picture of what this whole process has been like for me.  I was so scared and unsure, but at this point, I wouldn't turn back.  I know that I've made the right decision and I know that in time I will heal and I will be even better than I was before!  If I do have other physical problems later I will try to make the best of what I do have and learn from each and every experience I come across.  To quote an old cliche, Life is Short and so I will do my very best to make the most of it! 


I will also lean on my friends.  The support that I have found in the past few weeks has been amazing, from phone calls, to texts, to e-mails, to visits, to cards and gifts, and facebook support.  I had initially kept most of this process very private and dealt with everything alone.  Then I decided that I was really scared, so I admitted it and I reached out to my friends and family and I can not express how glad I am that I did.  Everyone has truly been so amazing!  Thanks so much to each and every one! 

Pain

Good morning,
Yesterday went quite well.  I am continuing to rest but am also continuing on with my day and walked for 1/2 hour.  Although it is hard to say for sure, my energy level seems pretty good.  I haven't put it to the test with a full day's work though.  I didn't nap yesterday and only woke up a couple of times through the night last night.  My incision line is covered in steri-strips but seems to be ok and is not very painful.  My house is neat and tidy, the kids are fed and clean and the I am on top of the laundry.   The house is definitely in better shape then when I am working full time :)  I haven't had any weight gain and overall I am feeling pretty good.

The only problem I am is having is the pain in my mouth.  My soft palate has been really sore since I woke up in recovery.  I have been eating mostly a liquid diet this whole time.  It is getting a little boring and so last night I thought that once again I would try something solid and now my soft palate is ON FIRE!!!!  I know it is likely my fault but I can't wait to be able to eat real food.  Television shows and especially commercials are torture to watch, not to mention all the food that my family is eating in front of me.  Today is the worse day of pain in my mouth during this whole recovery process.  I am hoping that it is the storm before the calm....You know, that it has to get worse before it gets better.  Regardless I have promised myself no talking for the next two days and NOTHING BUT BLAND LIQUID until my mouth is feeling much better!!!  If it is not feeling any better tomorrow I will call the Surgeon.  I am also gargling with salt water after I eat and still drinking plenty of ice water.  So, please take it from me, if the your soft palate/uvula is painful after surgery please DO NOT eat anything solid until it is feeling much better. 

Despite this, I feel that I am doing well and I am sure that with time this pain will subside as well and before you know it I will be able to eat real food again.  I can't wait!  Maybe I can convince my husband to take me to a nice restaurant once I am feeling better. 

Tuesday, March 29, 2011

Ice Water

Yesterday after I posted I started to feel much better.  I did relax quite a bit and was able to watch a movie but I also did some laundry, some cleaning and even went for a 20minute walk.  My throat is still very sore and my incision line is swollen and tender, but I do feel as though I am getting better each day.  The ice water has been my best friend.  It really helps my throat to feel better and staying hydrated will also help the healing process.  I tried to eat more solid food yesterday for breakfast and lunch.  Although I was able to get them down, I found that it made my throat more painful for the rest of the day.  A throat lozenge at bedtime helped but today I am back to mostly liquids. 

My brain used to be in a constant fog and now I feel as though I am thinking more clearly than I have in a long time.  I don't know if that is an effect of the surgery or just that I am not experiencing all  the normal stressors of day to day life.  I definitely could get used to this change in my thought processes, either way. 

I did take a nap for about an hour yesterday.  I probably could have gotten away without one but I am trying to rest my body so that it can heal.  My goal will be to walk longer and nap less as the week goes by. 

I had been working on weight loss prior to the surgery and was prepared for my weight to go back up again post-op.  However, at this point, I am still gradually losing weight.  I know that it is early and I will try not to become discouraged if it does bounce back up again. 

Monday, March 28, 2011

Cytomel

Cytomel tablets for thryoid replacement
Last night was a rough night.  I tried to stay away from the Tylenol 3 but woke up at 4am in severe pain.  I actually woke myself up because I was groaning in pain.  I took the Tylenol with a large drink of water and finally went back to sleep.  I woke up feeling the effects of the codeine and felt terrible but after taking my cytomel, eating breakfast and relaxing I am starting to feel more normal again. 

I will take the cytomel until the pathology report comes back (in about 7days).  If the pathology is clear I will then start Synthroid.  If I need RAI I will need to be hypothyroid.  Since Cytomel is shorter acting than Synthroid it can be stopped to induce a hypothyroid state sooner. 

Incision 2 days post-op



The following day after surgery.  I was feeling quite well besides a sore throat and some neck pain.  I even went for a short walk with my son and was doing light house chores.  My husband told me that I should relax, but I told him that I wasn't quite sure how to do that.   I wanted to spend some time watching a movie with my family but they were all busy with their own things.  I watched some TV as my kids went to friends.  I have been so lucky to have so much support in the form of people wathcing the kids, bringing us food and sending well wishes.  I really think that this has helped me to feel so much better so soon. 

I have still been eating a liquid diet and have found that ice water has made a huge difference.  I always have a glass nearby and am constantly filling it with ice.  (*tip*)

Family wanted to come visit us in the afternoon so I took a nap so I would be ready. Still when they came I didn't expect to be tired so soon.  When they left I was ready for bed again.  I was able to relax with the kids and help get them ready for school the next day before I finally fell asleep exhausted.  

For Breathing Exercises

This is the tool used for breathing to increase lung capacity. 

One day post-op

The day after surgery I was still in the hospital.  My vitals and calcium were monitored regularly and I was allowed out of bed.  The first time that I got out my blood pressure plummeted again but eventually it returned to normal.  There was also some concern about my temperature but I think it was because I wasn't taking the Tylenol 3.  I felt as though there was something stuck in my throat but couldn't dislodge it. The nurses thought that maybe it was the drains but when the drains were removed there wasn't any relief.  I later discovered that my uvula was stretched and inflamed from the ET tube and this made swallowing quite difficult.  The nurses gave me a tool to breath in to help re-inflate my lungs.  I was to breathe in it 15 times every 15 minutes.  My final blood test for calcium was taken that evening and when it came back normal I was discharged and sent home to sleep in my own bed.


I did take a Tylenol 3 at bedtime but was still awake every 2 hours.  I felt as though my uvula was choking me but found that if I lay on my side it helped some.  By morning I was feeling much better and couldn't believe that I would need 2 weeks off of work.  I started Cytomel and continued with my liquid diet (due to that irritated uvula). 

Sunday, March 27, 2011

Scar After Drain Removal



The drains were removed yesterday and cotton placed over the holes in case of more draining. 
I passed the day reading, e-mailing friends and talking to hubby. 

The lady in the next bed

That night I do my best to get some sleep and despite the mutiple tests etc throughout the night, I actually feel rested the next morning.  I learn from my surgeon that my thryoid was very difficult to remove.  It was very vascular and he feels that if we had waited much longer it may have been impossible to remove.  Now, I know that I did the right thing.   Although the nurses are nice, I don't learn much about them. However, I do learn about the lady next to me.  She has been there for 4 weeks because she doesn't have any family or anywhere to go.  She had a family but they don't want anything to do with her.  I wonder what it takes for that to happen.  I can't help feeling so sad for her and so grateful for all that I have.  A friend of mine has brought me magazines, I barely glance at them before I hand them over to the lady in the next bed.  I know that this isn't enough, but I don't know what else to do. 

post thyroidecectomy menu

My calcium levels remain low normal and I get through the day until I have to sit up to eat dinner.  Then my blood pressure bottoms out.  For others out there ready this please don't worry that this will happen to you.  It is the way that my body responds to general anaesthetics and is not routine.  From then on, I am not allowed out of bed until I can keep a steady normal blood pressure.  I am able to get all of my food down with a straw.  Here is the wonderful menu I eat during my stay in the hospital: 

Dinner:           
Vegetable Broth
Orange Gelatin
Apple Juice
Tea

Breakfast:
Orange Gelatin
Apple Juice
Coffee

Lunch:
Vegetable Broth
Orange Gelatin
Apple Juice
Tea

Dinner:
Vegetable Broth
Orange Gelatin
Apple Juice
Tea

So much variety, colour and texture....yum!!! 

Post thyroidectomy scar complete with drains.

This is how I looked when I woke up.  I don't remember being in the recovery room, only transferring to the bed in my hospital room.  The nurses were poking and prodding for calcium levels and vitals.  I was asked to keep wiggling my toes and fingers, drink ice water, do deep breathing exercises and stay awake.  My husband had to keep reminding me of these things as I fell in and out of sleep all afternoon.  I would be talking to him and fall asleep mid-sentence to do laundry in my dreams. 

Saturday, March 26, 2011

Thyroidectomy

Hubby and I get to the hospital and can't quite believe how busy the surgery admit is. All of the beds are full! We take a chair and wait to be called. I am even more nervous now! Then the nurse calls me to take my vitals. We share a name so I take that as a good sign. I also learn that my scale at home matches the hospital and that all of my hard work really has paid off. Yeah!! She gives me an Ativan and so I can almost ignore the prisoner brought in by armed police men, remembering all of the "good signs" I've had!! I still have my phone and am answering texts and e-mails while on the ativan...probably not a good idea :).


Next we are brought to another room to wait. I am feeling more relaxed. I hold Hubby's hand and just wait. I have had surgery before but I have never walked directly into the surgery suite as I do this time. I hop up on the bed on my own as I have one last panic attack...wondering if I am really doing the right thing. I begin to cry but the nurse calms me down. She tells me that I'll walk up the same way I fall asleep so I try to smile. I am terrible with needles and they have a hard time getting the IV but I stay strong and smile. I ask which anesthetics they'll use and the anaesthtist tells me propofol. I hate that it will knock out my memory but I don't have a choice so I work hard at remembering everything. The surgery suite is so large and bright. I can smell the disinfectants and other chemicals and I love the pattern on the nurses surgical cap. It is decorated with pale pink flowers. The anesthetist injects the sedative IV and it stings so bad that my toes curl but then the assistant places a mask over my face and I don't remember anything else.

Friday, March 25, 2011

Goodbye Goiter....

Today is the day. I'm surprised I was actually able to sleep last night. I did though and even found it difficult to wake up. Now I'm up and just waiting. I need to be at the hospital in another hour and then the fun begins. I woke up in turmoil again but read my ultrasound report and felt at peace again. I feel exhausted, yet super aware. I can hear all the little humming noises the house is making. The first morning sun is pouring in the window illuminating edges that seem hidden later in the day. I am anxious, terrified even but I can, I will do this and I will feel better.

Thursday, March 24, 2011

The last day with my thyroid.

Today is the last day with my thryoid.  I feel like I should say goodbye in some significant way, but how do you say good bye to your thryoid?   It's not like you can hold a big farewell party!   So today I will go about my normal business and try to be sure that my house is clean, laundry is done and the fridge is stocked for my return from the hospital. 


Yesterday I had my pre-op at the hospital. Even as I sat there going through the pre-op tests I was still wondering if I was doing the right thing.  I knew that I had to be absolutely sure of the decision to go ahead with the thyroidectomy before the actual procedure.  Then I remembered that the last ultrasound showed continued growth on that dominant nodule.  I did some more research and realized that I could rarely find personal accounts of nodules as big as mine.  I have been concerned because my goiter is really not that visible on the outside of my neck.  At least it's not as large as I've seen during my research.  However, I think that more of my thyroid is inside my neck and possibly under my sternum where it causes more compression on my trachea and esophagus. 


Although my neck is uncomfortable at this point it is still quite bearable. However, when I have a cold the compression feels much worse and if this nodule continues to grow it will become unbearable and possibly even dangerous.  I would rather undergo a planned surgery when I am healthy and relatively young, than have emergency surgery later when I may not be as healthy.  I have multilpe nodules all over my thryoid with the smallest being greater than 10mm and the largest being longer than 50mm.  If any of these nodules continues to grow it could cause a problem.  What if all of them continue to grow?  


I have known all of this for some time and that is why I originally made the decision to go ahead with the surgery.  The problem has been that there has been so much time between making this decision and the actual surgery date that I forgotten the reasons I made the decision.  I don't want to have surgery, and I don't want to take medication for the rest of my life, but I do believe that in the long run this is the best decision for me. 

Tuesday, March 22, 2011

Three days.....

Today was so crazy at work that I forgot all about my surgery. At the end of the day I checked my e-mail and found a message wishing me luck on Friday. It took me a minute to remember why I needed luck on Friday :). Hopefully the rest of the week goes by like that as well. I have my pre-op appointment tomorrow though, so that will probably jog my memory.

Today the surgeon's office finally phoned me to give me a time for the surgery. They left a message though, so I will have to call them tomorrow to find out.

Monday, March 21, 2011

Four days....

I can't believe that I only have 4 days left with my thyroid. I spoke with a lady on the weekend who had the surgery and is really glad that she did. I hope I feel the same. I go from being totally at peace with the decision, to utter and complete panic, where I can barely breathe, to just forgetting about it altogether. I have to say that I like the forgetting the best :).

This morning I woke up with a sore throat. If I get a cold, especially with a fever, I will have to cancel the surgery. I don't know if I could deal with that. It's not that I want the surgery but I am concerned about going through all if this waiting again.

For the past few days, I have felt as though I have something stuck in my throat and I feel more of that choking sensation. I'm not sure if I am mire conscious of it or if it is getting worse.

The last ultrasound stated that the module was 50mm long and over 30mm thick and wide. It doesn't look that big from the outside so it must be growing inwards.

Sunday, March 20, 2011

Five days and counting..

Less than a week before my surgery date and I am getting nervous (Ok, I admit I've been nervous all along). 

I still haven't received a pre-op package but the endocrinologists office was VERY helpful, where the surgeon's office was not.  The receptionist at my endocrinologist's.  Phoned, faxed and went to the hopsital on her lunch hour to lobby for me.  So now, although I don't have a pre-admit package, I do have an appointment at the hospital for pre-admit.  Sometimes I think that all of these road blocks are signs that I shouldn't go ahead with the surgery, but I know that's just supertition or else, me trying to justify cancelling  :) 

I have e-mailed my family and close friends to let them all know the date and have asked for their prayers and support so now I plan to go about my regular business until the time of surgery.....

Thursday, March 17, 2011

My Goiter



My Goiter
I don't know if you can appreciate the swelling in my neck.  It doesn't appear very large here but is causing compression on my trachea (windpipe) and my esophagus. 

Monday, March 14, 2011

Less than 2 weeks before surgery

Here I am less than 2 weeks before my scheduled surgery and I am still waiting for the pre-op package I was told would come in the mail.  I had meant to call last week but had a hectic week at work.  I decide that I should call my surgeon's office to find out where it is.

I call and get a recorded message telling me that the whole office is closed until the day before my surgery.....

I know that I will need bloodwork and a physical exam, so what am I to do.  I have about had it with this surgeon's office and once again wonder if I am actually doing the right thing.  Then I remember how difficult it is to breathe sometimes. 

I am able to reach my endocrinologist and she gives me the numbers for the hospital to reach the surgery booking department.  Hopefully they will be able to get a package to me soon. 

Getting my life back

Now, I am back to waiting and worrying.  I have been putting my life on hold.  I can’t vacation with my friends.  I have to tell people that I can’t commit to plans, as I’m not sure when this surgery will take place.  I become depressed and obsessed with a stupid date.  I also wonder again if I am making the right decision.  I am back on the internet, reading accounts of people who didn’t have a good experience.  I decide that I need another ultrasound to help me make this decision.  I have my GP order a third ultrasound and I learn that my thyroid and the dominant mass have both grown significantly since the last scan.  I also get another severe respiratory infection which makes breathing difficult once again.  I continue my on-line research and come to the conclusion that the surgery IS the right thing to do for me. 

I tell my employer that I have to have surgery but am not sure when.  She has me try to find replacements for fabricated dates.  In December I call and try to get some idea of a date.  They have no idea.  They can’t even give me a month:  probably January; maybe February.  They will call me when they know.  I don’t want to call them and drive them crazy so I wait, and I wait and I wait……

The end of January, I have an invitation from an old friend to go on an amazing adventure.  It is a hiking expedition at the end of May.  It will be very physical but very rewarding.  I tell my husband thinking he will think it is crazy but instead he encourages me to go for it.  I decide that I can’t pass it up.  It gives me new life, new hope, a new attitude.  I begin training for the trip right away.  I make other plans; I get back to life, back to living.  My friend has no idea but on some level she saved my life with her invitation.  I am so excited.  Still before I can book the trip I need to b sure that my surgery won’t interfere.  I call the surgeon again.  I want to know if there is a date and if he feels that I could do this trip after it.  When I call they say that they may have a date in March but they aren’t sure.  I ask my question and they say they will get back to me.  One week later, I still haven’t heard and can’t reach them.  I call the endocrinologist and ask if I will be ready to hike 2 months after surgery.  They say I will.  I book the trip.  A few days later I finally reach the surgeon’s office, they confirm the date and now here I am preparing for the surgery.  My employer asks me if I really need the surgery and I briefly wonder once again, but I can’t go back and forth like this and I know that for me this is what I need to do. 

I am glad that I have this trip to look forward to.  It has made me increase my exercise regimen and I will work even harder to get better faster post-op.  I am focusing on the trip instead of the surgery and I WILL GET BETTER QUICKLY.   For the past 6 weeks I have been working hard to be in good shape for the surgery and to make it to this trip.  I have lost 10 lbs and am feeling stronger and more positive every day.  I won’t let my crazy goiter get me down. 

A Surgery Date

I go back and forth and back and forth.  Finally I decide that I will do it and I forget about it.  I wait to hear about a surgery date.   I move on with my life.  I enjoy the summer and forget about my thyroid.  I do wonder a little bit, why I haven’t heard about a date.  Maybe they forgot about me?  Maybe I won’t have to think about it again. 

Finally, as I am planning a quick vacation for a family wedding, I decide that I should touch base with the surgeon.  They said that the surgery date would be in October.  At this point it is October and I haven’t heard anything from them.  I can’t reach him but 2 days later I receive a message on my phone that they have a date.  The date is in 2 weeks.  Really!!!!  I have waited months for this date and now I have only 2 weeks, to find someone to care for my kids, someone to replace me at work and 2 weeks to mentally prepare for this!!  All while on vacation and trying to participate in a wedding!  I politely decline the date and tell them that I need more warning.  They caution that the next date won’t be until the New Year.  I tell them that I understand and begin the waiting again. 
So, for the next few months I don’t think about much else besides my crazy multi-nodular goiter.  It isn’t huge to look at, but it does choke me.  I can put up with that, but what if it is cancer?  What if it gets larger and I can’t eat?  What if I can’t breathe?  I ask all of my friends what they would do?  I discuss this with my husband to no end.  I make an appointment with my GP.  She says that the endocrinologist and the surgeon know better.  I believe her but still want her opinion.  She says that the surgery isn’t a big deal and that if the specialists are recommending that it be removed, I should listen to them.  If I was asking her if I should have a corn removed she would urge me to think more of it, as the recovery from that can be worse but usually recovery from a thyroidectomy goes very smoothly.  She says to discuss it with my family…huh?  I mean I have spoken with them, but they don’t have medical backgrounds.  Why can’t she answer my questions?  *sigh*

Making a Decision

I make a list to help me decide what to do: 

Reasons to keep my thyroid: 
   1. NO need for replacement medications. - what if I don't respond well with syntroid?

2. No risk of surgical complications
      a)  hypocalcemia - tremors, nausea, later bone loss, etc.
      b) hypoparathyroidism
      c) loss of voice - either temporary or very rarely permanently - I wouldn't be able to work. 
 
   3. Anesthetic complications: 
          a) brain damage
          b) kidney damage
          c) DEATH


Reasons to remove my thyroid:
1. It is large and growing

     2. It is compressing on my trachea and esophagus. - What if the compression turns into an emergency situation? 

3. I have risk factors for cancer -
      a)  one dominant nodule
      b)  growing nodule
      c) compression of trachea and esophagus
      d) radiation exposure
      e) I'm not positive but I think I may have enlarged lymph nodes. 


I know that the biopsy came back benign but what if it was wrong.  I decide that I would rather take out a benign thyroid than miss a cancerous one and so I finally decide to go ahead with the surgery.  

Diagnostics and Decisions

The next day I see the surgeon at the hospital.  Again I am waiting for some time until it is my turn.  I have a love/hate relationship with hospitals.  I am in awe of what happens there but they instinctually make me nervous.  As I wait I can hear the consultations with the other patients.  This always makes me wonder about the truth in patient confidentiality.  When the surgeon finally comes to my side of the curtain, he is surprised to see me.  He says that the appointment should have been at his office, not the hospital.  Still he proceeds to discuss the details of the surgery, the possible complications and risks of pursuing the surgery, and of not pursuing the surgery.  He tells me that he strongly recommends the surgery but gives me the option to decline.  Now I am even more confused.  Should I proceed with the surgery, or shouldn’t I? 

If I don’t there is a risk that my goiter will continue to grow and could cause damage to other organs in my neck.  There is also still a slight risk of cancer.  If I do proceed with the surgery I will need to be on medication to replace my thyroid hormones for the rest of my life.  There is a risk that I will become hypothyroid and I have read accounts of people who have not responded well to synthetic hormone replacement.  What if that is me?  What if I can’t function normally after the surgery?  Not to mention the possible complications of the surgery itself:  hypoparathyroidism, hypocalcemia and laryngeal nerve damage.  These things can be permanent or transient but permanent changes are very rare.  I have had anesthetic procedures in the past and I don’t do well with them.  The drugs seem to hit me harder than the average person and I am out of sorts for days.  This with the addition of hypothyroidism and possible hypocalcemia, how long will I take to recover? 

The surgeon tells me that I need to see him at his office for another test so I book the appointment when I leave the hospital. I show up at his office in two days and again he is surprised to see me.  I assumed that I had to make this appointment regardless of if I was to have the surgery or not but he assumed that I should only come if I was booking the surgery.  Again, I left confused.  I did sign to book the surgery.  The next available dates weren’t for 7 months.  I figured that I had lots of time to think about it and change my mind if I wanted. 

Sunday, March 6, 2011

My Multinodular Goiter

The endocrinologist was very nice and professional, and explained all of the things I had researched.  She told me that she didn’t feel that my exposure to radiation should be a concern but still she wanted a second ultrasound and a biopsy.  I knew that this was coming but the idea of someone sticking a needle in my neck didn’t sit so well with me.  A needle in my arm was bad enough, but a needle in my neck….it just didn’t seem right.  She felt my neck expertly and explained that the risk of cancer was low but that I had to have it ruled out.  She also ordered more blood tests just to be sure that all of my levels really were normal.  I would definitely be surprised if they weren’t normal, after all of the times I have had them tested. 

I went for the second ultrasound…similar scenario as last time with me trying to see the screen and feeling that choking sensation from the position of my neck along with the probe pressing on my enlarged thyroid gland.  After some time, the radiologist himself showed up with a needle to obtain the biopsy.  My neck was cleaned and prepped and they actually stuck that thing right into my neck.  Boy, was I glad when it was over.  I wasn’t so worried about the waiting this time, just relieved that the needle was out of my neck.  

Flash forward about a week or so, I am home cleaning my house on a Sunday afternoon when the phone rings and it’s my endocrinologist….. On a Sunday!  She states that the test results indicate a benign multi nodular goiter (whew).   Despite the fact that it is benign she still recommends that it be removed surgically, due to the compressive symptoms that I have described.  She recommends surgical excision and has an appointment booked with the surgeon for the next day.  OK…wait a minute.  If this is benign, what is the rush to see the surgeon?  She explains that he is difficult to get an appointment with so she doesn’t want me to miss this one.  I accept her explanation; while in the meantime, my head is questioning the urgency and going off on all tangents at once.  

Saturday, March 5, 2011

My First Thyroid Scan

My first thyroid ultrasound was scheduled nearby and occurred within a few days of my doctor's appointment.  I wasn't nervous about the procedure but I was nervous about what the results would show so I waited anxiously for my name to be called.  When it finally was, I was led to a dark room and asked to lay down on my back, and put my head back.  I am able to somewhat read an ultrasound and so my instinct was to try to look at the screen but of course this didn't allow for the best positioning of my neck so I strained my eyes sideways to try to see.   The ultrasonographer placed the cool sticky probe on my neck and began scanning. It seemed to take forever and I often felt as though I was choking.  I was glad when it was over but then it was time to wait for the results. 


I am not so good at waiting and so I spent hours searching for information on thyroid diseases and cancer.   I learned that thyroid cancer was considered the "good cancer" but somehow this didn't put my mind at ease.  Of course, I was thinking of the worse scenario.  In my career as a veterinarian I have had exposure to radiation from x-rays on a regular basis.  I do wear protective clothing while restraining animals for x-rays, but I still couldn't help but wonder if I had caused these problems myself.  Had I exposed myself to enough radiation to result in thyroid cancer?  I tried to find information relating veterinarians to an increased risk of thyroid cancer but I couldn't find anything which would indicate such.  I tried to remember this and relax until the results came in. 


Then, finally my GP phoned me with the results.  I went to her office and learned that my thyroid was enlarged (like I couldn't tell from the lump in my neck), and that it had multiple nodules.  The thyroid is the shape of a butterfly with a left and right side and a center portion called the isthmus.  I had nodules in both sides as well as the isthmus.  The largest of these masses was on the left side and measured over 1 1/2 cm.   Although it is not uncommon for nodules to be present in the thyroid gland, the large nodule on my left was cause for some concern due to it's size.  I also learned that thyroid cancer is less common in  a thyroid that has multiple nodules than in a gland that has one solitary nodule.  I kept this in mind as I waited to see the endocrinologist.  It would be a much longer wait for this appointment so I had to keep positive and keep my mind on other things.